Morgan Malfara was born a beautiful, blue-eyed baby boy on October 22, 1997. With his parents Kristen and Robert and big brothers Jordan and B.J. they made a perfect family unit. At 10 weeks old, Morgan started to exhibit symptoms that would eventually be diagnosed as Leukodystrophy, a rare degenerative disorder with no treatment, no cure, and an expectation that Morgan would only live to about three years old.
His mother, Kristen began collecting information, making connections, and working exhaustively to do everything she could to make the most of the time she had with Morgan. This experience and a desire to help other families going through similar issues led to her creation of The M.O.R.G.A.N. Project. Today, Morgan has survived his initial prognosis by more than two decades and his story has been both help and inspiration to thousands of children and families across the country.