Kristen’s son, Morgan was born with a genetic disorder called Leukodystrophy, a rare degenerative disorder with no treatment, no cure, and an expectation that Morgan would only live to about three years old.
In the end, Morgan survived and thrived under his family’s care and Kristen recognized a need for a place to help families like hers find the resources and understanding of people going through similar experiences.
While The M.O.R.G.A.N. Project is evolving, its mission remains the same, weaving a community around the solutions required to make these lives a little bit easier. A little bit better. A little bit more connected.