Sharon Jeavons

• President

Sharon is the proud mother of a beautiful girl named Abigail. She is also honored to be Morgan’s aunt. In addition to being a wife & mother, Sharon is a full-time travel agent.

Sharon has served on the board of The M.O.R.G.A.N. Project, Inc. in an executive position since its inception. Sharon has tirelessly lent her support with fundraising events in her community, and through their efforts helped to get the word out about our organization to an even broader audience!

Sharon is a dedicated and loving member of our organization, and has brought her years of experience in the workforce along with her determination to see that we are successful in reaching our goals.

Kristen Malfara

• Founder & Executive Director

Kristen and her husband Robert are the proud parents of three boys – the youngest of which was born with a rare neuromuscular disorder classified as a Leukodystrophy. Shortly after Morgan’s diagnosis in early 1998, Kristen began researching Leukodystrophy, disabilities, therapy modalities, support organizations and everything else she could find regarding the special-needs community. It wasn’t long before she became a volunteer for the Hunter’s Hope Foundation and advocating for other families in her community with children in the same position as Morgan.

Over the past few years she has become an expert in areas that she never thought she could as a result of having to research, fight for and administer to Morgan’s various, complicated and always evolving needs.

In 2001 Kristen decided to dedicate her time and efforts to establishing a charitable organization in her son Morgan’s honor to help other families in the same position to do the same things for their own medically fragile special-needs children.

The M.O.R.G.A.N. Project, Inc. was incorporated in 2001 and serves all families of children with physical special-needs regardless of diagnosis, geographic location or any other limitations.

Adam Bird

• Director & Legal Advisor

Adam was born and raised in Melbourne, Florida, where he attended high school at Florida Air Academy. After graduating first in his class in 2001, Adam was awarded the National Merit Scholarship and was accepted into the Honors Program at the University of Florida. Adam studied History in the College of Liberal Arts and Sciences and graduated in 2005 with a B.A. He was then accepted into the Levin College of Law at the University of Florida where he received his J.D. in 2008.

While in law school, Adam twice interned in the Litigation Department at the Melbourne office of Gray Robinson, where he worked on a variety of cases, notably in the areas of commercial, maritime, and employment litigation.

Robert Malfara

• Co-Founder & Emeritus Director

Robert and his wife Kristen are the proud parents of three boys ~ the youngest of which was born with a rare neuromuscular disorder classified as a Leukodystrophy.

Morgan is now 18 years old, and is their inspiration and namesake of this organization. Although the physical, emotional and financial hardships of caring for a child with a life-threatening illness and all of its associated disabilities can be trying on any family, Robert has dedicated himself to making sure that Morgan gets whatever he needs.

In his free time he enjoys boating, fishing and spending quality time with his family.

Scott Jeavons

• Emeritus Director

Scott is the proud father of a beautiful little girl named Abigail. He is also Morgan’s Uncle. Scott, his wife Sharon and Abbie all live in Melbourne, Florida and help out in any way that they can.

Scott has already proven himself to be an indispensable member of The M.O.R.G.A.N. Project organization, by helping with our annual FUNdraiser, and sharing his vast knowledge of the insurance industry with us.

Now living locally, he has become our representative in the Cocoa Beach Chamber of Commerce, and actively speaks at public functions to raise awareness in the community and help to further our mission.

Kim Deffebach

• Medical Advisor

Kim is a PhD. Clinical Psychologist specializing in child development and has extensive experience diagnosing and treating children with various disabilities and disorders. She’s the parent of two small children, with recent Board experience with Club Esteem and the Junior League of South Brevard.

Grace Hobson

• Medical Advisor

Dr. Grace Hobson is Head of the Neurogenetics Research Laboratory and Director of Diagnostics for PMD at the Alfred I. duPont Hospital for Children in Wilmington, DE. She is also an Assistant Professor of Pediatrics at Thomas Jefferson University in Philadelphia, PA. She obtained a B.S. in biology from Mary Washington College in Fredericksburg, VA and a M.Ed. from the University of Virginia in Charlottesville, VA. She was a high school and junior high school science/biology teacher before getting a Ph.D. from the University of Delaware in Newark, DE and embarking on a career in research and molecular diagnostics.

Dr. Hobson’s research is aimed at discovering molecular mechanisms in PMD that will allow the development of rational treatments and ultimately a cure. She has received a grant from the National Institutes of Health to fund this work. Dr. Hobson has participated in meetings, symposia, workshops and family conferences on PMD. In addition, she helped to organize a PMD family meeting in 2000 and a symposium for families and researchers at the duPont Hospital in 2003.

Her contact with families, genetic counselors and physicians through her molecular diagnostics work will allow her to refer patients to The M.O.R.G.A.N. Project for support.

Tonya Bloodgood

• Director of Fun

Darren Scully

• Director & Events Chair

Brenda Marvin

• Director & Financial Advisor

Brenda Kinsey

• Director & Nursing Advisor

Karen Warr

• Treasurer

Sheela Mullin

• Secretary

Mason Williams

• Director & Legal Advisor