Kristen Malfara, Founder & Executive Director The M.O.R.G.A.N Project
Kristen and her husband Robert are the proud parents of three boys ~ the youngest of which was born with a rare neuromuscular disorder classified as a Leukodystrophy. Morgan is now 18 years old, and is their inspiration and namesake of this organization. Kristen is a stay-at-home Mom; Morgan is a full-time job all on his own! Shortly after Morgan’s diagnosis in early 1998, Kristen began researching Leukodystrophy, disabilities, therapy modalities, support organizations and everything else she could find regarding the special-needs community. It wasn’t long before she became a volunteer for the Hunter’s Hope Foundation and advocating for other families in her community with children in the same position as Morgan. Kristen prides herself on her ability to recognize a problem and aggressively pursue a resolution.
Over the past few years she has become an expert in areas that she never thought she could as a result of having to research, fight for and administer to Morgan’s various, complicated and always evolving needs. In 2001 Kristen decided to dedicate her time and efforts to establishing a charitable organization in her son Morgan’s honor to help other families in the same position to do the same things for their own medically fragile special-needs children. The M.O.R.G.A.N. Project, Inc. was incorporated in 2001 and serves all families of children with physical special-needs regardless of diagnosis, geographic location or any other limitations.